The Maternal Infant Child and Youth Research Network (MICYRN) is a Canadian not-for-profit organization that advances maternal and child healthcare by addressing national and international barriers to collaboration, to achieve efficiencies and optimize research investments. MICYRN identifies, collects, and maintains databases for researchers, and their National Contact Centre offers consultation services and support to industry, member sites, and others with research-related inquiries. Through Service Agreements, MICYRN provides logistical support to the Rare Diseases: Models and Mechanisms Network (RDMM), funded by the CIHR Institute of Genetics and Genome Canada.

Patient Involvement: MICYRN initiatives such as RareKids-CAN, a rare disease clinical trials and treatment network, involve patients and their families as expert stakeholders.

Initiatives: In 2024, MICYRN received a $20 million grant from the Canadian Institutes for Health Research (CIHR) Institute of Genetics to support the development and execution of RareKids-CAN: a Pediatric Rare Disease Clinical Trials and Treatment Network.

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